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Separating fact from fiction

Ahead of National Brain Awareness Week, Dementia: Understand Together campaign highlights its Top 7 Dementia Myths

Ahead of National Brain Awareness Week (March 5 to 11), the Dementia: Understand Together campaign, which is part of an ongoing initiative led by the HSE in partnership with the Alzheimer Society of Ireland and Genio, is today highlighting its Top 7 Dementia Myths.

Approximately 4,000 people, or an average of 11 people every day, develop dementia in Ireland each year, which is caused by different diseases of the brain. Indeed, there are over half a million people here who have had a family member with dementia, yet research shows that many of us do not fully understand the condition. With the number of people living with dementia expected to more than double by 2040, the need for better understanding has never been more important.

Professor Brian Lawlor,Consultant Psychiatrist and Chair of the Dementia: Understand Together campaign, comments: “Our research revealed that 1 in 2 Irish people know or have known someone with dementia. Despite this, only 1 in 4 people feel they have a good understanding of what dementia is and what it isn’t. This lack of understanding can result in friends and neighbours feeling awkward or embarrassed when someone they know is diagnosed with dementia, so often they say and do nothing. It can leave people with dementia and their loved ones feeling alone and isolated within their communities. By highlighting some myths that surround dementia, we hope to build people’s awareness and understanding and to encourage people to talk about their experiences of the condition. We need to bring dementia out of the shadows and into the open to help combat the stigma and isolation people with dementia and their families sometimes experience. By understanding dementia more, we can all take the first step to support people with dementia to continue to live well.”

Top 7 Dementia Myths

  1. Myth: There is nothing a person can do to reduce the risk of dementia. Not true. There is growing evidence that by keeping socially engaged and learning new skills or hobbies, as well as exercising often, not smoking, eating healthily, reducing alcohol intake and controlling high blood pressure, can help to lower the risk of dementia. Challenging the brain through crosswords, Sudoku and word searches may also be helpful in maintaining good brain health and in building cognitive reserve.
  2. Myth: Alzheimer’s disease and dementia are the same. Not true. Dementia is an umbrella term to describe a set of symptoms that occur when brain cells stop working properly. Dementia is caused by a number of diseases that damage the nerve cells in the brain. There are at least 400 different types, the most common of which is Alzheimer’s disease, with others including Lewy body disease and fronto-temporal dementia. Common symptoms may include difficulties with thinking and language, problem-solving and carrying out everyday tasks, as well as issues with memory loss and changes in mood and behaviour.
  3. Myth: Dementia is a natural part of aging. Not true. Dementia is not a normal part of getting older. In fact, nine out of ten older people don’t develop dementia, and a lot of people mature into their 80s and 90s without much memory decline.
  4. Myth: Only older people develop dementia. Not true. While dementia is more common in people over 65, younger people can develop dementia too. In someone under 65, it is called early or younger onset dementia, where people diagnosed may have a family history of dementia.
  5. Myth: Once you develop dementia there is nothing that you can do. Not true. Although there is no cure, there are steps that a person can take to potentially stabilise the course of dementia – at least for a time. These include medical treatment, community supports and practical life changes. Crucially, a diagnosis of dementia, does not mean that people cannot still live well with the condition.
  6. Myth: People with dementia can’t understand what’s going on. Not true. Very often a person with dementia can understand much more than they can express. It is important to communicate directly to the person rather than speaking to their carer or family member. You may just need to give the person time to gather their thoughts before they respond.
  7. Myth: Someone with memory loss must have dementia. Not true. Depression, stroke, infections, severe vitamin deficiencies, thyroid abnormalities and even side-effects of medications can cause memory complaints, which could be mistaken for dementia. There is also a certain amount of age-related forgetfulness that we can all experience. If there are concerns, always consult a GP in the first instance.

If you are worried that you or a loved one may be experiencing symptoms of dementia, it is a good idea to speak with your GP. You can also contact a dementia advisor by calling Freephone 1800 341 341 or visiting understandtogether.ie to find out more.

National Brain Awareness Week, co-ordinated by the Neurological Alliance of Ireland, sees a range of information events taking place countrywide – full information can be found at www.nai.ie

The Dementia: Understand Together campaign is funded by the HSE and The Atlantic Philanthropies, and began in 2015. The campaign website offers a comprehensive information resource on dementia, including a service-finder detailing county-by-county the dementia supports and services available. It also offers a range of training resources for carers, and for businesses and organisations in the retail, transport, public and financial sectors. Support packs, including posters, leaflets and badges, can be ordered also. Simply visit www.understandtogether.ie or Freephone 1800 341 341.

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